Epilepsy General Safety
While many people’s seizures occur randomly, some people find that certain things make it more likely they will have a seizure – we call these things ‘triggers’. Triggers are not the cause of the epilepsy, but they can increase the risk of disruption in the brains electrical activity which may then cause a seizure.
- Medication – missing doses, or stopping taking your medication suddenly
- Lack of sleep
- Being unwell with high temperature, or vomiting
- Stress (such as exams, arguments,difficult relationships), or excitement (such as birthdays, holidays, big events)
- Alcohol and recreational drugs
- Missing meals, or being hungry ordehydrated
NIGHT TIME SAFETY
- We recommend you do not sleep in the top bunk bed, or top of a cabin bed if you have nocturnal seizures, this is so someone can keep you safe if you were to have a seizure
- Keep the bed free of clutter – particularly wires (charging leads, headphones etc) to prevent injury in the event of a nocturnal seizure
- We are not able to recommend any overnight monitoring, but some people do choose topurchase video monitors, or anti-suffocation pillows. Many people opt for audio monitors so that they would hear any seizures occurring. Further information can be found at https://www.epilepsy.org.uk/info/dailylife/safety-aids-equipment/alarms-monitors
If you are out alone, stay on well-lit roads where possible and always cross at designated crossings.
When cycling, or on a scooter wear a well -fitting helmet, and other protective equipment (such as knee pads) as appropriate.
- If possible, try to take showers instead of baths, to reduce the risk of falling under the water if you have a seizure.
- Bathroom doors should not be locked, and you should tell someone else in the house when you are having a shower.
- When you go swimming, ensure you are with a sensible adult who knows you have epilepsy, or tell the lifeguard this when you enter the water.
- You can find information about your current medication at the top of your latest clinic letter.
- For information on your medication, you can visit www.medicinesforchildren.org.uk
- It is important to know that some medications can interact with your epilepsy medication, including Some hormonal contraception (females only),
- Please make sure you tell us/ your GP about any other medications you are taking – including herbal supplements or vitamins
Having a medical ID means if you are out and had a seizure (or other medical problems) those around you including paramedics will know you have
epilepsy, and can contact your parent/carer.
- Bracelets can be purchased at the charity MedicAlert - Medical ID jewellery & services
- Free seizure ID cards can be ordered her ID cards and care plans | Epilepsy Action shop
- Emergency medical information can also be put on your mobile phone, and is accessible from locked screen.